Thursday, January 26, 2012

January Update

Madison turned 13!!!
I can't believe I actually have a teenager...blows my mind! 

Madison's Grandma Roxane planned a WONDERFUL & SPECIAL 13th birthday for Madison.
First she rented a limo for Madison and her friends.

Madison with her parents ;)
Grandpa Mike, Madison, and Grampy
With mom and James

Nana, Madison, & Grandma Roxane


We took the limo to the Grapevine Mills Mall to let the girls do some shopping and ate at the Rainforest Cafe.
Teenage girls can not go without texting even if they are cruising limo style....ridiculous!!!

After the mall/dinner.  We came back home to eat cake, open presents, and watch a slideshow I made for Madison.  It was so sweet looking back at all the years of her growing up.  I am so blessed to have such a beautiful, independant, loving, strong-willed, intelligent, and caring daughter.  I see other girls her age being naive and boy crazy but Madison is different.  Don't get me wrong...she LOVES boys but she also feels she's young and there is no reason to NEED a boyfriend (crushes are more fun). I'm just proud she is mature to know how to make good choices and how she opens up to me about her life.  I may not get that too much longer but pray she always feels safe and secure to talk with me.  I just can not express how blessed I feel!
Madison is my child who likes to be different so she wanted an eyeball cake and cupcakes with Superman and Aliens vs. Monsters.  With my A-type personality it was SO hard to not have an ALL theme matching party but we compromised by her allowing the plates/napkins match and then me letting her cakes be what she wants.  :) 

Grandma Roxane got Madison an iphone which she has been wanting FOREVER!  I feel she's not responsible enough for one yet but we will see....she always lost her other cell phone.  ;)  The scary doll was her grandmother's and she had the phone hidden in the diaper. 

All the girls stayed over night for a sleep-over. It was a great party!!!


My birthday is in January as well...so I am one year older.  ;(

It's been a laid back month so far.  Autumn had a DMSA test Tuesday to check her kidneys.  We won't get the results until Feb.7th.  Praying kidneys continue to look healthy so we won't have to cath or start on meds.  She did great for the test.  They first put in a IV for the medicine.  They had to poke her 4 times to get an IV started....she did not even cry!! She just watched Dora & was fine.  We then had to wait 1.5 hours before going back to get the pictures of her kidneys.  They had during going on during the test (which took about 20 mins) so she was good.  So proud of her!  We have vent clinic at the end of the month and that is about it for this month.  So thankful for the calmness after the holidays.


Forgot to add that Gage went in for more bloodwork to check his thyroid levels after they lower his medicine dose.  He did not cry and did SUPER!!! His levels came back normal and so his medication dose is working.  Yay!




Sunday, January 1, 2012

2011

Every new year you hope for the best but never really know what challenges or triumphs it will bring.  My 2011 was filled with more triumphs than challenges and it was a nice change from the three years prior to it. 

After 3 consecutive years of surgeries, Autumn went an entire year without a surgery! I know 2012 will most likely bring a couple of more surgerical procesures so I am rejoicing for the year break!  It's was also an awesome year in her development where we have started to see the "lightbulb" come back on in her brain and she's making more strides each day.  She started school which has been a HUGE blessing because she works SO much better when she's not in her home environment.

 Life is finally starting to feel "normal" again.  I have been going through a rollercoaster grieving process the past 4 years dealing with Autumn's disability. I am so thankful for it and would not change what I have been through but when you expect your child to be "healthy & normal" and to learn she's disabled brings on ALOT of emotions you have to learn to deal with.  You have to let go of the old life you had and learn to embrace this new way of life.  I had to get rid of all those expectations I had and learn Autumn will do things MUCH slower and at the time she is ready to do them.  I had to realize I would have to push her hard at times to learn something new but then there are some things that she may NEVER do and have to accept it.  When new age appropriate milestones came, the realization of how far behind Autumn was would bring the grieving process again.  It's a continous circle of realization, sadness, and then acceptance.  You have to choose to focus on the accomplishments and not the challenges in order to get through it.  Honestly, everytime I hear a child say "mommy" my heart breaks.  If I hear a baby belly laugh, I become sad.  As I watch toddlers play and run around, I wish mine could join in.  This is ALWAYS present in my head but I have to CHOOSE to smile and be happy for the mommy who can hear her baby call her name, for that child who can express their happiness, and for those toddlers who can run, jump, and play.  It's a hard process but this past year I think I finally did better at embracing our new "normal" and life finally feels more normal than not for the first time in 4 years.

I think in 2011, I finally connected more with my family since I was able to start processing our new life better.  Madison and I have always had to struggle with our relationship because we are so alike but so different as well.  I think we finally figured out how to embrace our differences and work together with our strong, independant personalities.  We are learning how to talk each others languages and it feels great!  Usually when your child becomes a teenager, the connection/communication starts to slip but ours is getting better which makes me extremely thankful since these next 7 years are going to be her hardest and I want her to feel close enough to me to share.  I love how she now opens up and shares with me about her life.  Only 4 days and I will be the mom of a teenager! Gage however is a different story, I am not sure what has happened to my sweet, momma's boy.  He is SO moody.  I think it may have to do with his thyroid medication that we are still figuring out the dosage on but a lot is also his age.  He use to be able to turn on that cute, baby boy charm on his mommy but it does not work anymore so him and I need to learn how to figure this one out.  He will be our work in progress we will have to tackle in 2012.  ;)  James and I have FINALLY found a flow to our marriage.  We learn more and more each day how to speak each other's love language and it's finally starting to work like a well-oiled machine around here.  We have completely opposite love languages so it's such a struggle to love how your partner feels love and not how you feel it.  We found that give and take that it working for the both of us.  In 8 years, James and I rarely fight because he's so laid back and pretty much let's me win the battles but although this was working for me it was leaving him a little bitter.  I had some bitterness as well since my life pretty much stopped when Autumn was born and he got to continue on his normal path for the most part.  I had to quit working outside of the home, I was left with 3 kids home ALL day with nothing to do because I had a child I could not take ANYWHERE, I moved from my friends and family for Autumn, my life now revolved around Autumn's daily care needs, doctors appts, therapy, and strangers "nurses" invaded my home. I was feeling resentful and bitter as well.  This year was our toughest year of marriage.  We had little time for each other and both were struggling spiritually.  I was feeling that calling for adoption and he was feeling a calling into ministry of some sort. Once we decided to obey God's calling in our lives, things just synced with our marriage.  The adoption process has taught us so much and bonded us and James has been given the opportunity to step in with 4 other men to start teaching our life group at church.  I feel like the last 3-4 years have been preparing and leading us for this next year of 2012.  I feel an excitement stirring in my heart that God wants to use us even more and that makes me joyous. 

This verse has always been my strength these past 3 years: "Consider it joy when you encounter various trials, knowing that the testing of your faith produces endurance. And let endrance have its perfect result, so that you may be perfect and complete, lacking in nothing." James 1:2-4

I know 2012 will bring trials because we will strive to walk in obedience to him.  My prayer for 2012 is that Autumn continues to reach her goals and remain healthy.  Madison will enjoy being 13 and have an awesome year.  Gage will learn the world does not revolve around him and start to mature into a respectful young boy.  ;)  James and I will continue to strengthen our marriage and obey God's calling in our lives.  God will protect the son he has picked for our family and bring him home.  I can continue to make strides on acceptance of the AWESOME & DIFFICULT path God placed in front of me. Most of all, that we really start to love others and our lives will reflect God's grace and forgiveness and that others will want the same for their lives as well. 

HAPPY NEW YEAR!!!