I just wanted to take a quick minute to brag on Autumn. Her OT came in today to do her evaluation and work with her. Her OT had not been in for about 3 weeks so she was greatly pleased at her progress and all the new things she's doing. Anyways, Autumn is on the developmental age of a 8-9 month old and some things she's doing right on with her age. This makes me so proud of her because she's a determined little girl and has been working so hard to be a big girl. When she first came home in January at 4 months old she was like a newborn and now she's almost on target. Becky "Gea" (her day nurse) is determined Autumn is going to be sitting up on her own for her birthday party. Wouldn't that be something? I remember being discouraged thinking she would never hold her head up and now she's wanting to sit by herself.
Her PMV is a off and on thing with her...most days she can only tolerate it for about 20 seconds and then every once in awhile she can keep it on for about 5 mins. Although when she does have it on she needs her nose and mouth suctioned frequently and you can see she really works hard to tolerate it. It's just one of those things she has to get use to breathing differently with it on and we have to work slowly with her.
I'm also confused about Autumn's eating lately. We started 3rd stage foods and the first week or so she had a little gagging getting use to the new textures but then did fine with them. Our ST wanted us to start toddlers meals and table foods with her. Well, the toddler meals are not doing well and I am pretty sure she is aspirating them because once she actually coughed up the food in her trach and the other times she coughs and desats with some bites. She is doing good with tables foods like waffles, cookies, bananas, pop tarts but for some reason is not doing well with the toddler foods. I have many questions to ask Dr. Gelfand at vent clinic next week. We have also had to go up at night on her vent settings so I need to check about that as well.
So, please say a prayer for us next week as we travel to Dallas with all the kids and Autumn has appts. 3 days straight. Wednesday she will be sedated for her MRI which of course makes me a little nervous being put under and then also nervous what the MRI will show. This will be our first trip back to Dallas since the horrible trip we had in June so I just pray all goes smoothly this time. ;)
Her PMV is a off and on thing with her...most days she can only tolerate it for about 20 seconds and then every once in awhile she can keep it on for about 5 mins. Although when she does have it on she needs her nose and mouth suctioned frequently and you can see she really works hard to tolerate it. It's just one of those things she has to get use to breathing differently with it on and we have to work slowly with her.
I'm also confused about Autumn's eating lately. We started 3rd stage foods and the first week or so she had a little gagging getting use to the new textures but then did fine with them. Our ST wanted us to start toddlers meals and table foods with her. Well, the toddler meals are not doing well and I am pretty sure she is aspirating them because once she actually coughed up the food in her trach and the other times she coughs and desats with some bites. She is doing good with tables foods like waffles, cookies, bananas, pop tarts but for some reason is not doing well with the toddler foods. I have many questions to ask Dr. Gelfand at vent clinic next week. We have also had to go up at night on her vent settings so I need to check about that as well.
So, please say a prayer for us next week as we travel to Dallas with all the kids and Autumn has appts. 3 days straight. Wednesday she will be sedated for her MRI which of course makes me a little nervous being put under and then also nervous what the MRI will show. This will be our first trip back to Dallas since the horrible trip we had in June so I just pray all goes smoothly this time. ;)
1 comment:
It is so exciting that Autumn is doing so well!
Post a Comment