Monday update

Yesterday Autumn had a pretty good day. She has been having a few desats and had to be bagged a couple of times to come back up. They moved her oxygen up just a little. They think she may just need a bigger trach size so they may give her a larger one when they change it again. James and I are still practicing changing the ties and doing her feeds. We never get the trach ties tight enough though because we always feel like we are going to choke her but we are learning it's okay to get them REALLY tight. It takes us about an hour to do the bath and tie changes. :) She is usually pretty awake all day long and just takes a few cat naps and then she sleeps really good at night. She weighs 8 lbs. 8 oz. now. Getting big! They are giving her breathing treatments with an antibiotic until the bacteria goes away. She is also getting her 2 month shots today as well as the RSV shot. We have to get it every 28 days for 5 months and may have to travel to get them since doctors usually don't keep them on hand since they cost $1,600 per shot!!! They are highly recommending we get it since kids on vents are more likely to get RSV and that is the last thing Autumn needs. :) We still don't know when we will get to go to the Baylor house--I'm trying to just wait patiently but kind of need to know soon so we can decide if James will be flying back Wednesday to work or staying here and I'm really eager to get home ASAP. Keep praying things will move along quickly so we can be home.