Thursday, October 2, 2008

A good and uneventful day

This morning when I got to the hospital they had already started the acid reflux test on Autumn. They put a nasal tube in and everytime she eats, sleeps, gets irritable, etc. then we push a button so they can see what her PH levels are depending on what she is doing. They will run this test until 9:00 in the morning. In the afternoon they came in to start the sleep test but they wanted to put 2 more nasal tubes in so the nurse told them no because Autumn would not be able to breathe if she has 3 nasal tubes in, oxygen, and a feeding tube in her mouth. So, they are coming back tomorrow to start the sleep test. We also have not heard any results about the urological x-rays. Autumn has not had any apnea episodes since last night so she did well today but the whole time I was there she did not wake up or open her eyes at all. They started her back on feeds through the tube and she is up to 17 cc now. A speech therapist came in and showed James and I how to work with Autumn and teach her how to suck correctly. She wants us to work with her about 3 times a day for 10 minutes each time to get her sucking on our finger or her pacifier and make sure she is doing it correctly and taught us how to get her to do it correctly and showed us how to tell if she is sucking effectively or just chomping and working too hard. She said she would be in about twice a week to see how things are going. The nurse was concerned today because where her shunt was put it was a little red looking so she was going to have the doctors come look at it and make sure it has not malfunctioned or anything. Also her back closure was leaking some yellow substance so she wanted to doctor to look at that as well. James and I both left around 4:00pm today and went back to Mesquite to take a nap and have dinner and he is just now on his way back to the hospital so he will be calling to give me an update if there is one. Tomorrow night James will stay the night here with me because there is another baby in our room as well and that mom wants to stay the night for her baby's surgery. I think it will be a good break for James even though he hates to leave and I know Gage has been missing him so it will be good for him to spend time with Gage before they leave on Saturday. Gosh, I am going to miss the kids next week when they are gone but at least they will be back next weekend.

No comments: