Today was not too eventful. Autumn has not had an apnea episode since this morning. They mainly occur when she nipple feeds so they are tube feeding her again and doing it over a 30 minute time period so she will not apnea. She also has more episodes at night and when she gets mad. She does have a temper like her momma and I think she may be a little strong-willed as well. She likes to lay one way and today she kept getting herself face down trying to turn her face the other way. She would get so mad at us when we would make her turn her head back and she just throws a fit and cries which also makes her have apnea episodes. She also took out her feeding tube last night because I guess she did not want it anymore. She is such a wiggle worm and is always trying to push herself forward or turn her head or pull on tubes. It amazes me how well she lifts her head only being a little over a week old.
The ear, nose, and throat doctor came in today. They put a nasal scope down Autumn's throat to look at her vocal cords. They said everything looks great and they do not think there is an obstruction with her airway. They are going to do a sleep test on her either tonight or tomorrow night so they can see the episodes for themselves and monitor her. The sleep test will let us know for sure if it is an obstruction or if it is a neurological problem. If they say it is an obstruction then they will take her to the OR to have another scope done that goes past the vocal cords and will look at the airway. If it is a neurological problem then I don't really know what the next step will be--not sure if they will do the decompression surgery or not. I just hope they find the problem soon so we can get it fixed and home asap.
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