It feels great to be home for a few days. The kids were so excited to see me and had to show me all the new things they can do. I can see now though that it is starting to effect Gage that things are so abnormal lately. He started getting sad and crying a little and told me he wanted to go to Dallas. He said he misses Autumn and can't wait for her to come home so he can hold and kiss her. Madison is already getting sad knowing I will be leaving Monday and that Gage gets to go with me but she will have to stay here for school. The good news is that we are all together until then and we are going to make the most of our time together.
We did set up a meeting for Tuesday at 3:00pm to meet with Dr. Adams who is the Director of Pediatric Developmental Disabilities at Scottish Rite Hospital. He wanted to meet with James and I before having a care conference with all the doctors. We already know that the neurosurgeons want to do the trach so we already have their opinion but they are not the ones who see the kids once they leave the hospital. Dr. Adams will be able to tell us what he sees and give us his expert opinion on what will be the best option for Autumn. He said we may not even need a care meeting with all the doctors after talking to him because we can just make our decision and he will take care of getting things done and the conference may not have to happen until we get closer to going home time. I think after talking with him we will feel more at peace about the decision we will have to make and hopefully he will be able to answer all of our questions. I will try to post some updates this weekend but no promises. :)
1 comment:
Lacy
You will love Scottish Rite Hospital. We have a little girl at our school that goes there for her scoliosis. We are praying that God will guide you in the decisions that you have to make for sweet Autumn.
Jean
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